Collaborators

Staff

Mahsa Shabani

Mahsa Shabani has a Bachelor in Law and LL.M in Public Law (Shahid Beheshti University Tehran) aMahsa Shabanind a Postgraduate Master in Bioethics ( Erasmus Mundus Master of Bioethics, KU Leuven, University of Nijmegen and University of Padova).  Her main research interest revolves around legal, ethical and social aspects of genetic testing and genomic research. As a research associate and legal advisor, previously she has been involved in a number of public law, health law and bioethics, and technology law projects. Since September 2012 she has been working at the Center for Biomedical Ethics and Law at University of Leuven in collaboration with Prof. Pascal Borry. Currently she is a post-doctoral researcher on the ethical and legal challenges of data sharing in genomic research.  She was previously a visiting scholar at the Center of Genomics and Policy at McGill University. She is also collaborating with the Regulatory and Ethics Working Group of Global Alliance for Genomics and Health initiative since June 2014.

 

Email: mahsa.shabani@kuleuven.be

 

 

Louiza Kalokairinou

 

 

Louiza Kalokairinou holds a Bachelor degree in Law (Aristotle University of Thessaloniki, 2010), an LLM in Intellectual Property Law (Queen Mary University of London, 2011) and an Erasmus Mundus Master of Bioethics (KU Leuven, Radboud University Nijmegen, University of Padova, 2013). 

Since October 2013, Louiza is a PhD candidate at the Centre for Biomedical Ethics and Law (Faculty of MedicineDepartment of Public Health and Primary Care, KU Leuven). Her PhD project “Ethical, Legal and Social Aspects of Direct-to-Consumer Genetic Testing”
falls under the supervision of Prof. Pascal Borry (KU Leuven) and Dr. Heidi Howard (Uppsala University). Her research is funded by a PhD Fellowship of the Research Foundation Flanders (FWO). During her PhD, Louiza has been a visiting student researcher at Stanford University and Uppsala University.

Louiza has worked as a legal trainee and as an intern at the Hellenic Republic National Bioethics Commission and at the European Patent Office. Her research interests revolve around ethical, legal and social aspects of genetics and genomics and the patentability of biotechnological inventions. 

 Email: Louiza.Kalokairinou@kuleuven.be

 

 

 

 Davit Chokoshvili

Davit Chokoshvili holds a bachelor’s degree in Public Administration from the Technical University of Georgia (2009) and a master’s degree in Public Policy from Central European University, Budapest (2011). In 2013, he completed the Erasmus Mundus Master of Bioethics at the University of Leuven, RU Nijmegen and the University of Padova. Since September 2013, Davit has been affiliated with the Center for Biomedical Ethics and Law at the University of Leuven, where his research activities have been supervised by Prof. Pascal Borry. Davit’s work focuses on issues in public health genomics, such as the policy, ethical, and psychosocial aspects of genetic screening programs. In 2014, he started a PhD project titled “Preconception carrier screening for monogenic disorders: an exploration of the ethical and social issues”, under the supervision of Prof. Borry.

 

 

Email: Davit.Chokoshvili@student.kuleuven.be 

 

 

Danya Vears

Danya Vears completed her Masters degree in Genetic Counselling in 2009 atThe University of Melbourne, Australia. Prior to this she worked as a senior research assistant at the Epilepsy Research Centre for eight years, exploring the genetic basis for epilepsy. She commenced her PhD in 2011 at The University of Melbourne under the supervision of Prof Lynn Gillam, A/Prof Clare Delany, and A/Prof John Massie. She completed her PhD thesis in 2015, entitled Genetic carrier testing in children: perspectives of parents and genetic health professionals, which involved qualitative methods. In June 2015 Danya began her position with CBMER and she is currently undertaking a Postdoctoral Fellowship under the supervision of Pascal Borry exploring the ethical and legal challenges of whole genome sequencing in minors which is a collaborative project with the Center of Genomics and Policy, Mc Gill University, Montreal, Canada. 

 

Email: Danya.vears@kuleuven.be  

 

 

 

 

Collaborators

Heidi Carmen Howard worked at the Center for Biomedical Ethics and Law (Leuven, Belgium) between 2009 Heidi Howardand 2011. She works currently at the Center for Research Ethics and Bioethics (Uppsala University). Heidi Carmen Howard received her undergraduate and doctoral degrees in Biology from McGill University (Montréal, Canada). The focus of her PhD was neurogenetics and it culminated in the cloning of the gene for Andermann Syndrome (ACCPN), a rare neuropathy primarily present in the founder population of Québec. She continued her genetics training in psychiatric genetics at the Centre for Genomic Regulation in Barcelona (Spain) and at the Douglas Hospital in Montréal (Canada).

With an Erasmus Mundus fellowship, she completed the Erasmus Mundus Master of Bioethics programme in 2008 and since then, with the support of the European Commission FP7 Marie Curie Career Development Awards (2009-2011; 2011-2013) she has been working on the ethical, legal and social issues (ELSI) related to genetics and genomics as well as biobanking at KULeuven (Belgium) and inserm (France).

In the autumn of 2013 she spent a semester as assistant professor at the Radboud University Medical Centre (Netherlands). Her main areas of research are the ethical, legal and social aspects of direct-to-consumer genetic testing, public health genomics, genomic medicine, new genomic technologies, participant-centric research initiatives and the translation of genomics from the laboratory to the clinic.

Heidi Carmen Howard is also an invited scholar at the Centre of Genomics and Policy at McGill University (Montréal, Canada) and a member of the Public and Professional Policy Committee of the European Society of Human Genetics.

Email: heidi.howard@crb.uu.se