Projects

Ongoing projects

Implementation of an expanded carrier screening offer for couples (2018-2021)

Project funded by Research Fund Flanders on expanded carrier screening. Pascal Borry and Gert Matthijs are sypervisor of this project.

euCanSHare. An EU-Canada joint infrastructure for next-generation multi-Stuy Heart Research (2018-2022)

Horizon 2020 project with WP1 on ethical aspects related to datasharing. (www.eucanshare.eu)

Innovative Training Network in Female Reproductive Care (2019-2023)  

Marie Curie Training Network in which we have a PhD focused on ethics.

Smartphone Crowdsourced medical data for biomedical research: Addressing the ethical, legal and health policy concerns (2021-2023)

Bilateral Scientific Cooperation Project Flanders-Québec funded by Research Fund Flanders

Next generation DNA sequencing. Socio-ethical analysis of standardization in decision and communication patterns of test results (2018-2022)

Internal KU Leuven funded research project

Electronic Personalized Informed Consent (2019-2023)

Internal KU Leuven funded research project

Concluded projects

For sale: your genetic profile. Ethical problems and policy challenges of advertising and selling genetic tests directly to the public. (2013-2017)

This PhD-project is funded for four years by the Research Foundation Flanders. (2013-2017) Pascal Borry is promotor of the project, PhD student is Marina Louiza Kalokairinou.

Whole genome sequencing. A ‘genetic’ report for every child? (2014-2017)

This project is funded for the period 2014-201 through the Research Foundation Flanders. It is a bilaterial Scientific cooperation project between Flanders and Québec. Pascal Borry is promotor of the project.

EUcellex. Cell-based regenerative medicine: new challenges for EU legislation and governance (2013-2016)

This project is funded by FP7 for the period 2013-2016. Pascal Borry was involved together with Herman Nys in WP4 on cord blood banks.

COST action Citizen’s Health through public-private Initiatives: Public health, Market and Ethical perspectives. (2013-2017)

This project was funded by the European Science Foundation for the period 2013-2017. He was vice-chair of the Action.

Challenges in Global Collaborative Genomics Research (2013-2017)

This PhD-project is funded for four years by the Interfaculty Council for Development co-operation of the KU Leuven. (2013-2017) Pascal Borry is promotor of the project, PhD student was Mahsa Shabani.

Parliaments and Civil Society in Technology Assessment

PACITA is a four-year EU financed project under FP7 aimed at increasing the capacity and enhancing the institutional foundation for knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the diversity of practices in Parliamentary Technology Assessment (PTA). Pascal Borry was involved in an expert working group on public health genomics.

Erasmus Mundus Master of Bioethics (2016-2016)

The Erasmus Mundus programme (2006-2011),(2011-2016) is a co-operation and mobility programme in the field of higher education which promotes the European Union as a centre of excellence in learning around the world. It supports European top-quality Masters Courses and enhances the visibility and attractiveness of European higher education in third countries. It also provides EU-funded scholarships for third country nationals participating in these Masters Courses, as well as scholarships for EU-nationals studying at Partner universities throughout the world. (Programme Director Paul Schotsmans, Programme Coordinator Towards the European Commission: Pascal Borry).

Public Health Genomics

PHGEN is funded by the General Directorate for Health and Consumer Protection (DG SANCO) under the Health Programme and is coordinated from the European Centre for Public Health Genomics (ECPHG) at Maastricht University in The Netherlands. Pascal Borry was involved in the Work Package on quality assurance.

Tests génétiques en vente libre sur internet: ressorts, développements et consequences d’une offre en émergence (2010-2012)

This project is a research project financed by the French Institut de Recherche en Santé Publique. It is an international project which is coordinated by INSERM laboratory U558. Pascal Borry is member of the advisory board of this project.

ENGAGE. European Network of Genomic and Genetic Epidemiology (2008-2012)

This project is a FP7 research project. Pascal Borry is a member of the Scientific Advisory Board and Steering Board of this research project.

Governance of preventive genomics. Rearranging responsibilities in preventive health care, the role of primary care, public and occupational care, commercial parties and consumers

This project is funded by the Centre for Genomics and Society in the Netherlands. Pascal Borry is member of the project advisory board. The project is coordinated by the VU Amsterdam.

Genebanc (2006-2009)

Genebanc (Genetic bio and dataBanking: Confidentiality and protection of data. Towards a European harmonisation and policy) was a Specific Targeted Research Project (STREP) funded by the European Commission in the Sixth Framework Programme. ( Project number: FP6-036-751.) Period: 01/10/2006 – 31/09/2009. Pascal Borry was workpackage leader in this project.

Eurogentest I (2005-2009)

EuroGentest (01/01/2005-31/12/2009) is an EU-funded Network of Excellence (NoE) with 5 Units looking at all aspects of genetic testing - Quality Management, Information Databases, Public Health, New Technologies and Education. Through a series of initiatives EuroGentest encourages the harmonization of standards and practice in all these areas throughout the EU and beyond. As member researcher in the ethics unit, Pascal Borry studied ethical aspects related to genetic testing in children and adolescents.

Genetics and Paediatric Health (2009-2010)

This project is a Knowledge Synthesis Grant which has been submitted to the Canadian Institutes of Health Research. The project is coordinated by McGill University. Pascal Borry iwas collaborator in this research project.

Ethical, Legal and Social aspects of direct-to-consumer genetic testing (2009-2011)

This research project is an Incoming International Fellowship (Marie Curie) that has been awarded to the Canadian post-doctoral researcher Heidi Howard. Pascal Borry was copromotor of this project together with Herman Nys.

euCanSHare. An EU-Canada joint infrastructure for next-generation multi-Study Heart research (2018-2022)

euCanSHare will develop the first centralised, secure and sustainable platform for enhanced cross-border data sharing and multi-cohort personalised medicine research in cardiology. At its heart, the platform will contain the most comprehensive cardiovascular data catalogue ever assembled, which will facilitate data discoverability and exploitation in full alignment with the FAIR principles. The project will implement the interoperability of currently fragmented yet mature IT solutions developed by the consortium members for generating a comprehensive multi-functionality platform. It will also integrate major cardiovascular data sources from Europe and Canada, including the renowned MORGAM, BiomarCaRE and CAHHM initiatives. euCanSHare’s legal framework will be built through detailed ethical and legal interoperability analysis, while investigating innovative solutions for promoting responsible Open Science based on the emerging blockchain technology. Initially populated with 35 European and Canadian cohorts (corresponding to about one million records), the platform will provide extensive functionalities, including for data deposition, data harmonisation and quality control, which will support the integration of new cohorts beyond the duration of the project, thus ensuring its scalability. Moreover, sustainability will be targeted by leveraging through our multi-disciplinary partners the most established data infrastructures, namely ELIXIR, EGA, BBMRI and euro-BioImaging in Europe, as well as Maelstrom from Canada. The unique features of the platform will be demonstrated and adjusted through several use cases, including for biomarker validation, knowledge discovery, cardiovascular risk assessment, public health research and industry-driven studies. Furthermore, intensive outreach campaigns and hands-on workshops will be organised to attract a range of stakeholders, data providers and end-users from the academic, public health and industrial sectors.

Federated Networks for Genomic Data Discovery, Analysis and Sharing: Ethical and Legal Challenges (2017-2020)

 

Post-doctoral fellowship offered to Mahsa Shabani on datasharing by the Research Fund Flanders. Pascal Borry is supervisor of the project.

 

Next-generation sequencing in diagnostics: development of normative perspectives for the return of results (2017-2020)

 

Post-doctoral fellowship offered to Danya Vears on return of results by the Research Fund Flanders. Pascal Borry is supervisor of the project.